On August 3rd 2017 our sweet baby girl Aubrey Elizabeth was born. She was 28 weeks 4 days gestation, and weighed 1 pound 9 ounces. She was so beautiful and perfect; but the doctors had decided, based on her ultrasound readings, that the intrauterine environment had become dangerous and it would be best to bring her out into the world.
We had learned a few weeks prior that she had a few heart abnormalities and no matter the circumstance or timing of her birth would need intensive care from the Newborn ICU; so we knew she would be brought there immediately and that without these interventions she would not be able to survive, but it was still so hard to see our little baby with so many tubes and needles, all alone in a stale NICU bed.
Because of her precarious situation, she was put into the minimal stimulation area of the NICU, where visits were encouraged to be only every six hours in order to minimize the stress on the infants. Low voices, low lights, and infrequent touching were all part of the routine.
For seven days we visited her every six hours, around the clock. Once I was discharged from the hospital, we were allowed to stay at the Ronald McDonald House nearby so that it only took about 10 minutes to drive to the hospital. It was such a relief knowing that if anything were to change in Aubrey's condition, we could be at the hospital so quickly.
(By the way, we learned while staying there that in 2015 the Ronald McDonald House in Salt Lake alone received over $10,000 in donations via
pop can tabs!! Somehow, they turn those little pieces of aluminum into money and use it to house parents and families in need of housing close to the hospitals.
Amazing. So next time you open a can of pop, don't forget to save the tab! It will help pay for someone's safe night. (send it/them to me if you don't want to send it to RMHC - I'll gladly take care of it for you! Even if it's only one - I'm starting a collection jar ;))
In fact, we would soon learn just how important it was that we be near the hospital.
On the sixth day, August 8th, one of Aubrey's doctors and a genetic counselor sat down with us to explain that some genetic testing results had come back and Aubrey did indeed have a chromosomal abnormality called Trisomy 18 (learn more about this condition
here). In short, this meant that both Aubrey's small size and heart abnormalities were explained by this condition, as well as several other things, and also that her chances of 'getting better' and surviving outside of the NICU were slim to none.
That night I woke up just after 2 am. to a missed phone call from one of the NICU doctors. Feeling like my heart (and all of the rest of my insides) were lodged in the back of my throat I quickly dialed the only number we had for the NICU and prayed that the doctor would be close by. She was, and explained that Aubrey's vitals had taken a sudden, violent dip. She had since been restabilized, but was now, as the doctor put it, "stably unstable".
The next day the doctors told us that she had picked up an infection as well, and her signs indicated that she would not last much longer.
All of our family who could had flown out to Utah, so we gathered everyone for a family prayer, and then Davis and I spent the night with Aubrey in a private room in the NICU as she passed away, having lived seven days and brought a tremendous amount of love into the world. In her final hours, we were able to hold her, to smell her sweet scent, and agonize that she would soon move on.
Our experiences with Aubrey taught us that while her life on earth was short, it was perfect. Her situation was a far cry from our idea of perfect, or even good, but
she was perfect. She was wonderfully cared for and received the mortal body and experience that she needed.
"[She was] too pure, too lovely, to live on earth".
She also taught me a lot about love. All one had to do was to look at her little body to be filled with an almost overwhelming feeling of the most pure love. She had a very strong, wonderful presence. She didn't move much, but she touched every heart. She said nothing, but she changed our whole world.
She taught me about sacrifice. Not only did we go through great pains so that she could be born, but she too went through great pains so that we could have 7 days with her during mortality.
She taught me that you don't have to be great to change someone's world; all you need to do is
love.
So many things that we learned from her in just one week; and we are so very grateful for the time that we had to get to know Aubrey and to be with her. We are also so, so grateful to all those who offered prayers on our behalf - please know that your pleadings were not ignored but that it is because of so many prayers for Aubrey that we got to spend so much time with her and that so many other things that could have gone wrong did not go wrong.
Davis and I feel so very blessed and cared for by the Lord and our family and friends and we can't wait to see our girl again. We are grateful to the Lord for making known His
Plan of Salvation and the knowledge that families are meant to last throughout the eternities, not just for this mortal life.
I love you, Aubrey.